Hemophilia and Young Adulthood, Part 3 - Dating & Intimacy, Family, and Hope

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In Part 3 of BloodLine’s Hemophilia and Young Adulthood Series - our final episode - eight members of the Hemophilia Association of New Jersey (HANJ) give their perspectives on DATING & INTIMACY, how hemophilia plays a role in a young adult’s FAMILY, and what they HOPE for the future of the hemophilia community. This conversation was recorded live on January 17th at the Madison Hotel in Morristown, New Jersey and was co-hosted by BloodStream Media’s Natalie and Patrick James Lynch.

Series Sponsor: Shire. Visit bleedingdisorders.com to find useful tools and resources for managing life with a bleeding disorder.

Patient Organization Partner: The Hemophilia Association of New Jersey (HANJ). Learn more about HANJ and their mission by visiting http://hanj.org.

National Hemophilia Foundation’s Chapter Directory.

Hemophilia Federation of America’s Member Organizations Search Platform.

BloodLine is a BloodStream Media podcast series featuring deep dives into the stories and topics that matter most to the bleeding disorders community. Subscribe to The BloodLine Podcast on iTunes (http://bit.ly/BloodLinePod) or visit BloodLinePod.com to stream or subscribe via links.  Find all of BloodStream Media’s podcasts for the bleeding disorders community by visiting BloodStreamMedia.com.

Hemophilia and Young Adulthood, Part 2 - Pushing Limits, Emotional Support, Pain Management, and Substance Abuse

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In Part 2 of BloodLine’s Hemophilia and Young Adulthood Series, eight members of the Hemophilia Association of New Jersey (HANJ) discuss PUSHING LIMITS and finding boundaries, the need for EMOTIONAL SUPPORT, various forms of PAIN MANAGEMENT, and troubling topic of SUBSTANCE ABUSE. This conversation was recorded live on January 17th at the Madison Hotel in Morristown, New Jersey and was co-hosted by BloodStream Media’s Natalie and Patrick James Lynch.

Series Sponsor: Shire. Visit bleedingdisorders.com to find useful tools and resources for managing life with a bleeding disorder.

Patient Organization Partner: The Hemophilia Association of New Jersey (HANJ). Learn more about HANJ and their mission by visiting http://hanj.org.

BloodLine is a BloodStream Media podcast series featuring deep dives into the stories and topics that matter most to the bleeding disorders community. Subscribe to The BloodLine Podcast on iTunes (http://bit.ly/BloodLinePod) or visit BloodLinePod.com to stream or subscribe via links.  Find all of BloodStream Media’s podcasts for the bleeding disorders community by visiting BloodStreamMedia.com.

Hemophilia and Young Adulthood, Part 1 - Identity, Disclosure & Transitions

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In Part 1 of BloodLine's Hemophilia and Young Adulthood series, eight members of the Hemophilia Association of New Jersey (HANJ) weigh in on the topics of IDENTITY as someone with a bleeding disorder; DISCLOSURE in school, professional, and social settings; and TRANSITIONS, such as those from high school to college, from college into the professional world, and from singledom to marriage. This conversation was recorded live on January 17th at the Madison Hotel in Morristown, New Jersey and was co-hosted by BloodStream Media’s Natalie and Patrick James Lynch.

Series Sponsor: Shire. Visit bleedingdisorders.com to find useful tools and resources for managing life with a bleeding disorder.

Patient Organization Partner: The Hemophilia Association of New Jersey (HANJ). Learn more about HANJ and their mission by visiting http://hanj.org.


BloodLine is a BloodStream Media podcast series featuring deep dives into the stories and topics that matter most to the bleeding disorders community. Subscribe to The BloodLine Podcast on iTunes (http://bit.ly/BloodLinePod) or visit BloodLinePod.com to stream or subscribe via links.

The BloodLine Podcast presents: von Willebrand Disease - Part 3 - The Community & The Future

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Patient communities have started organizing and increasing educational opportunities for people living with vWD, thanks in large part to rising awareness of the disorder around the country and the world. This episode features some profound, challenging and inspir­ing stories of how the vWD community is connecting, growing and changing. You'll meet patients and clinicians and hear their stories, and their perspectives on the future of vWD treatment, management, and community-building.

For more information on living with Von Willebrand Disease please visit BeyondTheBleed.com